Showing posts with label New Year. Show all posts
Showing posts with label New Year. Show all posts

Wednesday, January 1, 2014

Happy New Year!

Staying up to ring in the new year was not all I expected it to be.  It was too foggy to see the Space Needle from here so I missed the good stuff.  We could see the lower fireworks around the Space Needle, but not the higher ones.  Terry stayed to see it on the TV and got the better stuff.  I had decided that I was not seeing much and turned to come back in, but by then it was already done.  

 

We kinda got delayed on meds and Terry had to take some at midnight anyway, so it wasn't all wasted time.  And Terry is having a hard time sleeping lately.  He went to bed to try to sleep but it just wouldn't work well for him. He will be happy to reduce the prednisone as soon as possible.

We spent some of our awake time working on a puzzle.  This one had an inch or two that wasn't on the front box picture, but that didn't matter too much, this puzzle was one of the hardest we have done in a while and it took us the longest to put it together.  We had been working on it for a couple days already and at times it was a bit frustrating.  If you are up for a challenge, this puzzle will give you one.


As the night went on we noticed more and more cars on the streets - it was worse than any rush hour for sure.

There were no more than a dozen people up on the roof trying to see and hear some of the sights and sounds of Seattle on this New Year's celebration and we were pretty quiet, but there was yelling and noise makers all around us.  For about a half an hour there was a helicopter that seemed to want to make sure that the neighborhood was all awake for this event - it seemed to be right above our apartment.

Trying to sleep after the new year came was just as tricky because the noise just kept happening, adding several sirens to the mix.   We haven't really ever been fans of staying up late, so why should that change now?   Interesting though - there were lights everywhere last night and this morning the lights are all off - or maybe it's just too foggy to see them.  It's pretty dark out our windows where they were once lit with Christmas lights in every direction we could see, and the workers across the street aren't coming in this morning as usual, and the roar of the vehicles on the streets is not really a roar, but just an occasional soft noise.  It's really quiet and dark, even at 7:10 this morning.

We will carry on with this day and accomplish a few good things, hopefully including a nap.  ;)  



First though, we head to the clinic for an 8:00 medicine infusion ...

We welcome 2014 and hope to make it the best year yet!   One day at a time!  We hope you have a great year too.

Tuesday, December 31, 2013

T38

Well, today we had a blood draw, a nutrition visit and a team visit.  It was a full day, and we were feeling pretty good until we visited with the doctors - then we got hit with the news. 

They said this "is not jump up and down news, but it's not give up hope news either".   They were wishing for more from Donor 2 than there is, but there is still time.  They were also wishing for less evidence of MDS.  We will continue on this course, testing on occasion, checking the trend as we go.  It's the trend that will tell us more about what is really happening.

The peripheral blood tells us that Donor 1 (Dennis) is 49% Lymphocytes, Donor 2 (new donor from Europe somewhere) is 19%, and Host (Terry) is 32%.    The myeloid cells are majority Donor 2, but that isn't the number they are looking for right now.

The knowledge they have at this point is leading them to consider what might be done next to help improve the chances of success with this transplant.  We will hold tight for the next couple weeks, with more medicine changes and watching what is taking place in the blood.  By the way - one more medication was added today and tomorrow morning we go in for an infusion of another.  They will then teach me how to infuse that medication and I will infuse it here at the apartment each day thereafter.  As they test and learn more about the trend they will make new decisions and we'll follow the course they plan for us.  We are trusting them, but mostly we are trusting God.

Good news is that his hydration has gone from 1500 to 1000 ml, so it's down to 4 hours again instead of 6 hours a day.  We don't know how long the medication will take to infuse, but that will probably add infusion time to our days.  More news tomorrow.

Terry explained todays news like this -
The rabbit is ahead, but it's early in the race, and our hope is the tortoise prevails. 

We'll let you know what we find out when we find out. For now -

HAPPY NEW YEAR!


image from here



Tuesday, January 1, 2013

Happy New Year!


We took a short trip to Longview for the weekend, to see my parents and have my father give Connor his patriarchal blessing.  We enjoyed our visit and loved to see all the family members that live there.  I wish I had photos of the weekend, but I didn't take any.  

We love FAMILY!

Have a great day and a happy new year!



Sunday, January 1, 2012

Happy New Year!



Well, this day I am
grateful for
a new year!

Welcome
TwentyTwelve!

(Image from
Pinterest)

Friday, January 1, 2010

Happy New Year!

Don't count the days...
Make the days
Count.

Wednesday, December 31, 2008

HAPPY NEW YEAR!

Have a wonderful new year celebration!
May your new year be filled with love, peace, and joy!