Happy Birthday to Thomas!
We love you!
Did you know?
After having our first two on their due dates, it was pretty tough to have Thomas a couple weeks past his due date. They induced me and when he was born they decided that he was actually early. They had it wrong! Can you believe that?!?!? :)
Friday, August 13, 2010
Thursday, August 12, 2010
Wedding & Back to Seattle again!
The wedding was wonderful!
The luncheon was great, thanks to our "angels in the kitchen".
The reception was awesome too!
The day was long, but oh so worth it! Terry did get kinda tired, but he has no regrets. He was where he needed and wanted to be.
Forgive me for not posting photos, I have none with me, so I'm soliciting photos if you have any from that beautiful day that you would like to send to my email address.
Skyler and Lisa make a beautiful couple, we really do wish to share some photos with everyone. We wish them them a long and successful lifetime of love and happiness.
It was good to see old family and friends, and it was good to meet new family and friends. We look forward to more good times ahead.
Our clinic visit started out pretty good, and we were thinking we'd sneak away to the family reunion, but by the time we were done, we realized we weren't going very far. They got the lab work back and are finding some numbers dropping.
WBC - 2.45
Hematocrit - 34
Platelets - 110
Neutrophils - 0.5
The kidneys look great but the liver isn't quite as good. They will still be watching that.
New meds started, and other meds tweaked a bit. They sent Terry for more lab work to check the chimerisms and will have results tomorrow evening. He may have to have a daily blood draw for the next few days.
Good news is that the PTLD / EBV on the adrenal gland is still gone and the x-ray to show the fluid in the lung cavity looked good. What next? We aren't sure, but we are sure that we are in good hands.
Thanks again to all of our family and friends who helped make our visit home such a great one!
The luncheon was great, thanks to our "angels in the kitchen".
The reception was awesome too!
The day was long, but oh so worth it! Terry did get kinda tired, but he has no regrets. He was where he needed and wanted to be.
Forgive me for not posting photos, I have none with me, so I'm soliciting photos if you have any from that beautiful day that you would like to send to my email address.
Skyler and Lisa make a beautiful couple, we really do wish to share some photos with everyone. We wish them them a long and successful lifetime of love and happiness.
It was good to see old family and friends, and it was good to meet new family and friends. We look forward to more good times ahead.
Our clinic visit started out pretty good, and we were thinking we'd sneak away to the family reunion, but by the time we were done, we realized we weren't going very far. They got the lab work back and are finding some numbers dropping.
WBC - 2.45
Hematocrit - 34
Platelets - 110
Neutrophils - 0.5
The kidneys look great but the liver isn't quite as good. They will still be watching that.
New meds started, and other meds tweaked a bit. They sent Terry for more lab work to check the chimerisms and will have results tomorrow evening. He may have to have a daily blood draw for the next few days.
Good news is that the PTLD / EBV on the adrenal gland is still gone and the x-ray to show the fluid in the lung cavity looked good. What next? We aren't sure, but we are sure that we are in good hands.
Thanks again to all of our family and friends who helped make our visit home such a great one!
Sunday, August 8, 2010
We Are Home!
Just thought we should let you know!
Medical Update:
The fluid from Terry's chest is not likely an infection, but they continued to test it. Terry did begin to feel a bit better the next day after the tap and though he has not regained all the energy he used to have, it is improving slightly.
The doctors were concerned at our leaving and asked that we be very careful and "don't get a cold". We really don't want to cause another concern, and are grateful that we were still there in Seattle under their good care when these other things came up. They really have a great facility and things run quite smoothly considering everything that they do.
WBC - 3.48
Hematocrit - 35
Platelets - 97
Neutrophils - 1.85
Oh - the liver has slightly improved, so the tap must have been a good thing for that in itself. We take any improvement we can get, even slight!!!
They have changed some meds and hope that we return in good condition :)
We plan to have a great time and return for the final stretch.
We hope that your days are good too!
Medical Update:
The fluid from Terry's chest is not likely an infection, but they continued to test it. Terry did begin to feel a bit better the next day after the tap and though he has not regained all the energy he used to have, it is improving slightly.
The doctors were concerned at our leaving and asked that we be very careful and "don't get a cold". We really don't want to cause another concern, and are grateful that we were still there in Seattle under their good care when these other things came up. They really have a great facility and things run quite smoothly considering everything that they do.
WBC - 3.48
Hematocrit - 35
Platelets - 97
Neutrophils - 1.85
Oh - the liver has slightly improved, so the tap must have been a good thing for that in itself. We take any improvement we can get, even slight!!!
They have changed some meds and hope that we return in good condition :)
We plan to have a great time and return for the final stretch.
We hope that your days are good too!
Thursday, August 5, 2010
Tap Time!
We went to the U of Wa Medical Center today and they took out a liter of fluid from Terry's chest. We don't know anymore about it than that. We hope to know something more tomorrow - it's another big day with lotsa visits.
Wednesday, August 4, 2010
Some good news for day 105:
Terry got a call today telling him that the EBV issue is resolved. His body fought it off on it's own. That's good blood from Dennis!!!!!
We still have other things going on - to U of Wa Medical Center tomorrow for a "tap" or biopsy (needle style) to test the fluid in his chest. GI doctor visit Friday. Friday is also the day we will learn when we can come home for the wedding.
We still have other things going on - to U of Wa Medical Center tomorrow for a "tap" or biopsy (needle style) to test the fluid in his chest. GI doctor visit Friday. Friday is also the day we will learn when we can come home for the wedding.
Tuesday, August 3, 2010
Day 104
Skyler, Chase, Connor, BrittanyJo, and Anthony came to visit us Sunday afternoon. It was good to see them again.
Monday was a full day. We had a barber shop party in the morning. Chase, Connor and Terry got hair cuts. The barber shop was this tiny kitchen and the barber was me, of course. That afternoon we walked to Pike Market, checked out the shops, the fish throw, the pig, and the gum wall, then stopped for an icecream cone on our walk home. Some of us went to Safeway, and then we made pizza for dinner, and the day was done.
We had a good breakfast Tuesday morning and the 3 older boys loaded up and went home. BrittanyJo and Anthony stayed with us and we had a long day at the clinic. We came home for a late lunch/almost dinner and played games, put together a puzzle and wrapped ribbon around water bottles for the wedding luncheon.
We went into our appointments thinking that the EBV or mass on Terry's adrenal gland was the main concern and left the appointment with a different view.
It seemed that the doctors were less concerned about the EBV after finding that Dennis has had that virus sometime in his life. Their thought is that lowering the immune suppressant medicine will allow Terry's body to fight it on it's own, so we were just going to watch it closely and try to ride it out.
The new concern seemed to be the liver, as it continues to worsen slightly with each new set of labs. Another concern is the discomfort and pain that Terry is having in his side. His energy level is declining too. They added a visit to the GI doctors to our schedule.
These newer concerns must be analyzed and controlled before we can leave. They had Terry get a chest x-ray after the doctor visit today so they could check things out again. We received a call last night telling us that they will be adding more tests and appointments to our schedule this week, due to the findings of the x-ray. There is more fluid in his chest and they must correct that.
They are aware of our upcoming wedding and want to let us go, but must have this under control before they can allow it. If it is a form of GVHD they must handle it sooner rather than later. They are still working to get thing taken care of by the end of this week so we can go home for a few days. We'll see.
It seemed that they were sympathetic to the issues we were having and felt bad that they could not send us home already. We continue to hope for the best, and be able to return to our home to be with family for this special occasion.
The bad new is that we will not be home for the family reunion next weekend. We will be back here to Seattle so these awesome doctors can care for this awesome man.
Monday was a full day. We had a barber shop party in the morning. Chase, Connor and Terry got hair cuts. The barber shop was this tiny kitchen and the barber was me, of course. That afternoon we walked to Pike Market, checked out the shops, the fish throw, the pig, and the gum wall, then stopped for an icecream cone on our walk home. Some of us went to Safeway, and then we made pizza for dinner, and the day was done.
We had a good breakfast Tuesday morning and the 3 older boys loaded up and went home. BrittanyJo and Anthony stayed with us and we had a long day at the clinic. We came home for a late lunch/almost dinner and played games, put together a puzzle and wrapped ribbon around water bottles for the wedding luncheon.
We went into our appointments thinking that the EBV or mass on Terry's adrenal gland was the main concern and left the appointment with a different view.
It seemed that the doctors were less concerned about the EBV after finding that Dennis has had that virus sometime in his life. Their thought is that lowering the immune suppressant medicine will allow Terry's body to fight it on it's own, so we were just going to watch it closely and try to ride it out.
The new concern seemed to be the liver, as it continues to worsen slightly with each new set of labs. Another concern is the discomfort and pain that Terry is having in his side. His energy level is declining too. They added a visit to the GI doctors to our schedule.
These newer concerns must be analyzed and controlled before we can leave. They had Terry get a chest x-ray after the doctor visit today so they could check things out again. We received a call last night telling us that they will be adding more tests and appointments to our schedule this week, due to the findings of the x-ray. There is more fluid in his chest and they must correct that.
They are aware of our upcoming wedding and want to let us go, but must have this under control before they can allow it. If it is a form of GVHD they must handle it sooner rather than later. They are still working to get thing taken care of by the end of this week so we can go home for a few days. We'll see.
It seemed that they were sympathetic to the issues we were having and felt bad that they could not send us home already. We continue to hope for the best, and be able to return to our home to be with family for this special occasion.
The bad new is that we will not be home for the family reunion next weekend. We will be back here to Seattle so these awesome doctors can care for this awesome man.
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