Terry's Appointment

We had a 12:30 blood draw and 1:30 doctor visit yesterday. 

We learned a little about the bone marrow biopsy.   The doctor said it wasn't really good news, but it wasn't really bad news either.  FYI - MDS turns into acute leukemia (that's bad), and the good news (so to speak) is that we are not there yet.   The bad news is that the percentage has increased since February.  MDS is now approximately 12%, up from about 5 or 6%.  We were hoping and praying that those numbers would have decreased instead of increased, but that was not in our favor I guess. 

It is apparent that the Vidasa infusions did not do as we hoped - there will be no more of them. There is another drug called Dacugen that we will try, starting next week ... we will continue to fight this thing until our miracle takes place.   This chemo is once a day for five days, every four weeks, and will be done in the infusion room at Wenatchee.

Blood results were not changed much ...
WBC = 0.3(LL)
RBC = 2.67(L)
HCT = 24.6(LL)
Platelets = 4(LL)
ANC = 0.1(LL)

So we stayed forever to get red cells and platelets transfusions.  The first bag didn't come until after 5:00pm.  Sitting there for almost three hours before they do anything is not a pleasant thing.  There has got to be a different/better way.  Where did we hear "you get what we get and you don't throw a fit"?  That is what we are trying to do.  However, we did ask a few questions and expressed disappointment in such slow going.  We are grateful for the pleasant nurses we had.

We left the clinic around 9:45pm and went straight to bed when we got home. I was so sleepy, but always wake up too early, even when I go to bed too late.  So ... GOOD MORNING!

"Every trial and experience you have passed through is necessary for your salvation." 

Brigham Young

(FYI - I found this quote because Bonnie Oscarson pinned it on pinterest a while ago, and I follow her there.)