I guess I should tell you that we are home from the hospital. Terry had a few days without fevers and home health care was available and scheduled so that we could come home Saturday afternoon.
We saw this on our way home ..., just up the road from our house. It's cold and that icicle proves it!
We had a great home health care specialist come help us and teach me about each of the three IV antibiotics that I have to give here at home. They are all different than I have given before, but one does use a pump like we have used before. It would have been really difficult to figure it all out on my own and he was a very kind person.
As for Terry's first night at home ... it was kinda crummy. He didn't sleep well, had some pain and a fever this morning. We knew we should not be out among others today so we stayed home trying to keep him warm and comfortable and away from illness as much as possible and gave him his IV meds on schedule.
Next doctor appointment is Tuesday unless something unforeseen happens (and we are praying that it doesn't).
Now I'm going to step back a few days and share a couple photos from the hospital because I don't want to forget them. The first is of Turner with his grandpa.
This next picture is of Elsie and Michael fixing the slide we gave her for her birthday. And then one of her enjoying the slide...and she does! ( I stole that photo from Tawnee's Instagram)
So, it's Thanksgiving time of year and I am almost feeling compelled to list a few of the things I am thankful for today.
I am grateful that Terry was able to come home. I am thankful for Terry! I love being with him. I am thankful for our home and the comforts within it.
I am grateful that we had a good home health care specialist to help me learn my new responsibilities. It's so much easier when you feel comfortable around a stranger in such a time as this. I am grateful for doctors and medicines that help cure illness and help prolong life.
I am thankful for life!
I am thankful for every member of my family! I love to see them smile! I love happiness! I am so grateful that we are an eternal family. I am thankful for love.
I am thankful for the Savior and for the peace and comfort that He sends our way in time of stress and frustration and pain and sorrow. I am grateful for His servants, His Prophets and Apostles and for their inspiring messages, especially those given this last general conference. I am grateful for every opportunity to be better than I am or have been, and for those things that inspire me to do so.
I am thankful for the priesthood and the powerful blessings that we receive through worthy priesthood holders.
Oh! One more thing ...
We have Connor's release date ...
December 17th. This makes our hearts rejoice!
Sunday, November 16, 2014
Monday, November 10, 2014
Two Weeks!
Terry is still spending his time in the hospital. So I thought I'd share another picture of the view from his window, two weeks later (first photo here). There is a little more color out there and it was beautiful in the sun today.

Terry still has fevers and this morning had a really bad chill and long lasting rigors that made the rest of the day pretty crummy.
Doctors are hopeful that the meds they are giving him will do the trick in a few days. They are also checking for a line infection and if there is one they will pull out the Hickman line. We hope that is not the case because it is so much better than poking him, especially since he bruises so badly each time they do. The doctors are also wondering if the high fevers will just be a common occurrence for Terry at this point. There are still no definite answers so we are just taking things one day at a time ... as usual.
As far as doing better ... it's hard to say from one day to the next. He had a really good Sunday, but a not so good Monday. Whatever I say will be wrong as soon as I say it. The doctor told us today that he thinks we can get him home before Thanksgiving.
He is somewhat in isolation. If anyone has a cold or other illness or any symptoms they shouldn't come in his room. Everyone is to wash up before they enter the room and I have noticed that the nurses and doctors are really doing a great job at that.
Terry still has fevers and this morning had a really bad chill and long lasting rigors that made the rest of the day pretty crummy.
Doctors are hopeful that the meds they are giving him will do the trick in a few days. They are also checking for a line infection and if there is one they will pull out the Hickman line. We hope that is not the case because it is so much better than poking him, especially since he bruises so badly each time they do. The doctors are also wondering if the high fevers will just be a common occurrence for Terry at this point. There are still no definite answers so we are just taking things one day at a time ... as usual.
As far as doing better ... it's hard to say from one day to the next. He had a really good Sunday, but a not so good Monday. Whatever I say will be wrong as soon as I say it. The doctor told us today that he thinks we can get him home before Thanksgiving.
He is somewhat in isolation. If anyone has a cold or other illness or any symptoms they shouldn't come in his room. Everyone is to wash up before they enter the room and I have noticed that the nurses and doctors are really doing a great job at that.
Saturday, November 8, 2014
News update from the hospital...
A few days ago the doctors started exchanging Terrys IV meds for oral meds in preparation for sending Terry home this weekend, but a couple days later he started getting worse (more fevers and worsened chest/lung pain), so he is still in the hospital.
They switched some meds back to IV and if things go well they might consider sending him home Tuesday. He is still getting fevers a couple times a day so we just don't know at this point what to plan on.
I spent the night (Friday night) since Anthony was with the band in Auburn so I'm writing this on the iPad with no knowledge of how to add an image, but I can write a quote, so here is one of my last pinterest saves.
F E A R has two meanings:
Forget Everything And Run
Or
Face Everything And Rise
The choice is yours.
It's been a rough 11 days so far with ups and downs, but we are doing all we can with what we have control over. I'm trying hard to face everything and rise because the other option is not pleasant.
We continue to pray for better health ...
We thank you for your prayers in our behalf.
And, we send our love your way.
Have a good weekend!
Monday, November 3, 2014
Overdue Medical News
I am really sorry that it has taken me so long to post. I have been slacking on posting, but not in caring, and I realize that it is time that I share part of what has been going on with Terry's health, and we are definitely going to post something more than the blood counts and transfusions that have become quite ordinary in our lives of late. Those things still took place but I guess we needed to jump outside that box for a different ride, and oh what a ride we are on.
I tried to keep a daily log, but didn't really want to blog it from the beginning, but now that we are several days into it, it seems easier for me to share. So, hang on for this ride with us if you choose to continue reading. However, at the moment this is not the daily info that I previously logged, but a short version. I might come back later to add the daily logged info, but I don't have time for that tonight. Even the short version is long enough.
Friday night (Oct 24th) Terry had one of those terrible trembling shakes and chills which led to a fever of 102.8 (anything over 99.9 is not good so this was alarming). We got this down with Tylenol, a cold damp washcloth rubbed around on his head, and cool drinks of water.
He had daily fevers (up to 103.8) all that weekend and we tried to reduce them as quickly as possible. There were other symptoms that kept us concerned, which included a sore on his outer calf of his right leg that kept getting worse (larger, redder, and more painful) and a pain in his upper left chest (similar to the pain one feels with pneumonia but higher).
We kept our Tuesday (Oct 28th) doctor appointment and went prepared to be admitted to the hospital. Terry needed the 2 units of reds and 1 platelets, but also needed some IV antibiotics so we went to Central Wa Hospital for those needed transfusions and to stay a few days to determine and treat the
other problems.
This was the view from his window the last few days. This is pretty on a sunny autumn day, but it's been raining or overcast most of the time.
There were several doctors questioning Terry and tests that took place the first day, but then things seemed to slow down, and we kept hearing what it could be or might be and probably was or wasn't.
The fevers and pain in the chest continued in the hospital and soon it was both sides of his chest. IV antibiotics continued and more were added and oral meds were added, as was PCA (pain medication at the push of a button as he needed). Platelets and red blood cells were given almost daily. They had him start wearing the oxygen hose Thursday because he was in enough pain that his breathing was very shallow. His stamina was lacking, if he had any at all.
After a couple days, his leg sore (cellulitis) began to look better and better each day but the other problems remained. It became apparent that he indeed had pneumonia and that he also had two spots in his lungs that looked like bacterial or fungal infection. They treated for that and Terry is beginning to feel better now.
FYI - Our last two Halloween days have been spent in a medical facility. This post includes photos from this years holiday/2014. If you wish you can click HERE for the post from last year/2013.
And here is another photo from the trunk-or-treat Chase participated in with the Car Club at Walmart parking lot in Wenatchee this year. Fun stuff! I guess I should have posted this earlier so I could wish everyone a Happy Halloween! Hope you had a fun one!
Okay, back to the medical news...
Terry looked really good today (Nov 3rd). The leg has improved a lot, but still has some redness that they think is just petechia (pe tee kee i). The pain in the leg is gone.
Terry had no fever last night :) and we hope it remains that way. He has not used the PCA med for two days so it was disconnected, his chest pain is lessoning, and they removed the oxygen today.
The nurse walked in and saw Terry clipping his nails this morning and got so concerned, almost begging him to stop, but told him to be super careful because his platelets were only 10. ;) We assured her that he would be careful, but the very fact that his platelets were 10 was a good reason to clip his nails today. (He hasn't seen 10 for a long time, but we know that is because he has been given platelets daily for awhile.) It became a fun moment that we smile about now.
He had a pretty good day today but we don't know when he comes home. We know they need to continue treating things so that they clear up completely and don't get worse, and we are taking it one day at a time.
Our laptop crashed awhile ago so I only have the ipad at the hospital and it's too hard to post from that, so I cannot promise when I'll post again since my time at home is so limited. We hope he will be home in a few days, but it's best that we make no promises, even though we wish we could.
I'll close with a quote Connor shared in his letter today.
This quote is from M. Russell Ballard, "Stay in the Boat and Hold On!", General Conference October 2014
Oh!
HAPPY NOVEMBER!
I tried to keep a daily log, but didn't really want to blog it from the beginning, but now that we are several days into it, it seems easier for me to share. So, hang on for this ride with us if you choose to continue reading. However, at the moment this is not the daily info that I previously logged, but a short version. I might come back later to add the daily logged info, but I don't have time for that tonight. Even the short version is long enough.
Friday night (Oct 24th) Terry had one of those terrible trembling shakes and chills which led to a fever of 102.8 (anything over 99.9 is not good so this was alarming). We got this down with Tylenol, a cold damp washcloth rubbed around on his head, and cool drinks of water.
He had daily fevers (up to 103.8) all that weekend and we tried to reduce them as quickly as possible. There were other symptoms that kept us concerned, which included a sore on his outer calf of his right leg that kept getting worse (larger, redder, and more painful) and a pain in his upper left chest (similar to the pain one feels with pneumonia but higher).
We kept our Tuesday (Oct 28th) doctor appointment and went prepared to be admitted to the hospital. Terry needed the 2 units of reds and 1 platelets, but also needed some IV antibiotics so we went to Central Wa Hospital for those needed transfusions and to stay a few days to determine and treat the
other problems.
This was the view from his window the last few days. This is pretty on a sunny autumn day, but it's been raining or overcast most of the time.
There were several doctors questioning Terry and tests that took place the first day, but then things seemed to slow down, and we kept hearing what it could be or might be and probably was or wasn't.
The fevers and pain in the chest continued in the hospital and soon it was both sides of his chest. IV antibiotics continued and more were added and oral meds were added, as was PCA (pain medication at the push of a button as he needed). Platelets and red blood cells were given almost daily. They had him start wearing the oxygen hose Thursday because he was in enough pain that his breathing was very shallow. His stamina was lacking, if he had any at all.
After a couple days, his leg sore (cellulitis) began to look better and better each day but the other problems remained. It became apparent that he indeed had pneumonia and that he also had two spots in his lungs that looked like bacterial or fungal infection. They treated for that and Terry is beginning to feel better now.
FYI - Our last two Halloween days have been spent in a medical facility. This post includes photos from this years holiday/2014. If you wish you can click HERE for the post from last year/2013.
| Elsie is trick-or-treating but nervous that her grandpa is in a patient costume this year. |
| Michael, Elsie, Tawnee |
| Anthony, Auger, Akleigh, Thomas & Boston, Dana, and Terry. |
And here is another photo from the trunk-or-treat Chase participated in with the Car Club at Walmart parking lot in Wenatchee this year. Fun stuff! I guess I should have posted this earlier so I could wish everyone a Happy Halloween! Hope you had a fun one!
![]() |
| Dana & Boston, Thomas & Akleigh, Anthony, Auger, Chase |
Terry looked really good today (Nov 3rd). The leg has improved a lot, but still has some redness that they think is just petechia (pe tee kee i). The pain in the leg is gone.
Terry had no fever last night :) and we hope it remains that way. He has not used the PCA med for two days so it was disconnected, his chest pain is lessoning, and they removed the oxygen today.
The nurse walked in and saw Terry clipping his nails this morning and got so concerned, almost begging him to stop, but told him to be super careful because his platelets were only 10. ;) We assured her that he would be careful, but the very fact that his platelets were 10 was a good reason to clip his nails today. (He hasn't seen 10 for a long time, but we know that is because he has been given platelets daily for awhile.) It became a fun moment that we smile about now.
He had a pretty good day today but we don't know when he comes home. We know they need to continue treating things so that they clear up completely and don't get worse, and we are taking it one day at a time.
Our laptop crashed awhile ago so I only have the ipad at the hospital and it's too hard to post from that, so I cannot promise when I'll post again since my time at home is so limited. We hope he will be home in a few days, but it's best that we make no promises, even though we wish we could.
I'll close with a quote Connor shared in his letter today.
"The words of the Lord are found in the scriptures and the teachings of the apostles and prophets. They provide us counsel and direction that, when followed, will act like a spiritual life jacket and will help us know how to hold on with both hands."
This quote is from M. Russell Ballard, "Stay in the Boat and Hold On!", General Conference October 2014
Oh!
HAPPY NOVEMBER!
Saturday, October 25, 2014
Doctor Visits this week
We spent our Tuesday in Wenatchee for a doctor visit, followed by transfusions of 2 red blood cells and 1 platelets.
Friday was less of a medical day with only the blood draw and 1 bag of platelets, so we were able to get home just after Anthony got home from school. It seems that every once in a while we only do platelets, but the reds are still not normal, they are just not as low as they need to be to consider a transfusion.
We keep on keepin' on!
Friday was less of a medical day with only the blood draw and 1 bag of platelets, so we were able to get home just after Anthony got home from school. It seems that every once in a while we only do platelets, but the reds are still not normal, they are just not as low as they need to be to consider a transfusion.
We keep on keepin' on!
| Image from Pinterest "If you are on the right path, it will always be uphill. The Lord is anxious to lead us to the safety of higher ground."
- Henry B. Eyring
(Disclaimer: I'm sorry if I post the same quote more than once here on this blog, I just can't remember what I have already posted and don't want to take the time to look. It's a good refresher anyway!) |
Wednesday, October 22, 2014
Another great weekend
We enjoyed a few days with Skyler and Lisa this past weekend and be there for the special event when Todd (our 11th grandchild) was blessed.
It was so good to see them all and to get reacquainted with Claire. We spent some enjoyable moments together. She loved painting on the Ipad.
Photo of our sweet Todd Ritter Hebdon.
It was our first visit to Oklahoma, and it was the same weekend as the Oklahoma University homecoming game so there were many travelers in the area.
We saw part of Oklahoma University campus and loved the beautiful old architecture of many of the buildings. We noticed that most of the brick on the buildings in this town were red brick and that the dirt in this town was red dirt. (I should have taken a photo of that dirt, because it was really red.)
This pumpkin patch was a familiar sight that brought a smile to our face and our hearts as we traveled back and forth each day we were there. It was especially fun to see coming in from the other direction but I couldn't get the camera in the proper place for a photo from there.
Terry was not as healthy as he might have liked to be, and he slept more than he would have wished to, but we are still grateful for the chance to be there for this special occasion. We had quite the adventure to remember, some things due to his health condition and some things due to our inexperience and lack of knowledge. It's a long story so I put it in its own post: An Adventure in Oklahoma.
It was so good to see them all and to get reacquainted with Claire. We spent some enjoyable moments together. She loved painting on the Ipad.
Photo of our sweet Todd Ritter Hebdon.
It was our first visit to Oklahoma, and it was the same weekend as the Oklahoma University homecoming game so there were many travelers in the area.
We saw part of Oklahoma University campus and loved the beautiful old architecture of many of the buildings. We noticed that most of the brick on the buildings in this town were red brick and that the dirt in this town was red dirt. (I should have taken a photo of that dirt, because it was really red.)
This pumpkin patch was a familiar sight that brought a smile to our face and our hearts as we traveled back and forth each day we were there. It was especially fun to see coming in from the other direction but I couldn't get the camera in the proper place for a photo from there.
Terry was not as healthy as he might have liked to be, and he slept more than he would have wished to, but we are still grateful for the chance to be there for this special occasion. We had quite the adventure to remember, some things due to his health condition and some things due to our inexperience and lack of knowledge. It's a long story so I put it in its own post: An Adventure in Oklahoma.
Labels:
Baby Blessings,
Family Gatherings,
Our Grandchildren,
Travel
An Adventure in Oklahoma
I want to share this story because it confirms the existence of a loving Father in Heaven that hears and answers prayers and how He uses others to do that at times. This earth life can be frustrating and hard, even in simple ways, but He is always there to help us in and through our journey. He doesn’t always remove the hardships, but rather, He helps us through them.
I am recording this story in detail to emphasize just how intense and stressful it was at the moment and because I want to remember it like it was. It's a long story though, so beware!
We flew from Pasco to Denver, then to Oklahoma City. We taxied to the runway in Denver and had to taxi back to the terminal because of a problem with the cabin pressure. We exited the plane and waited in a hallway/corridor area (for possibly an hour but we are not sure of how long it really was). While there Terry started to chill and shake terribly and we had nothing but a couple light jackets to cover him with.
We finally began boarding the plane again and the rigors continued. As we were out in the windy and chilly weather ready to walk up the ramp to the plane, one kind man in front of us noticed Terry’s condition and let us both board before him. I asked the flight attendant for a blanket but she said there weren't any. A kind gentleman behind me asked if Terry would like his jacket, but it has been so ingrained in my head that we not accept things like that from strangers (due to unknown health conditions of those strangers and Terry’s lack of an immune system) that I had to decline (but wish I hadn’t).
Eventually the rigors faded before we reached Oklahoma, as did his stamina.
We got the rental car we had previously reserved and found that it wasn't a small SUV like I had requested, but a small Nissan Versa. Oh Bother! I can't see well in those little vehicles (there isn’t enough window space so I see a little patch of road ahead and behind me, and a lot of car, including the rear view mirror right in my way). Not wanting to be a bother we kept the car instead of making a stink about it. We asked for directions to Norman and the gal showed us a map and explained how to get there, telling us it was really easy, so we headed out to Norman OK.
As I was trying to get comfy in the drivers seat that was slanted too far back, I found that it wouldn't change position. It became more and more difficult to sit in but I just hoped we would be there soon and I’d try to fix that later. We continued down the highway and came upon all these road change possibilities and found that we were already confused. We couldn’t even tell which direction we were going or even wanted to go. We got a few more miles down the highway and thought we must not be where we should be so we turned off the next exit to try and figure out where we were and how to get where we needed to be.
Immediately there were no other vehicles on the ramp and the road was dark ... I mean dark. I could not see much at all. And, if it was dark and we were all alone, who would be able to help us get where we needed to be? It was then that I realized that my headlights were not on. Oh Bother! I'm spoiled because the last few vehicles we've owned have the lights come on automatically when we turn on the car, but these did not and I didn’t notice it when we were around so many other lights. I pulled over to the side of the road to figure out where the switch was, but it took me a while so I was glad that there was no one else on that exit ramp with us.
We found a parking lot so we pulled into it so we could look at the map and get my little pillow out of our luggage that was in the trunk (to use it on the back of my seat), but I could not get the trunk open. The button on the key fob didn't work and we could find no button in the car to open the trunk, so I finally used the key itself to unlock it. (Side note: we had to park under a street light because we could still not find a light inside the car.)
We did see a large sign over the road that told us we were in Stockyard City but we didn’t know where that was on the map and where we go from there so we knew we needed to find some help. We saw a young man walking out of a restaurant and asked him if he could help us. He gave us more directions and told us it was real easy.
| image borrowed from here |
So we headed on our way again but somehow ended up confused again. This time we pulled off the highway to a Circle K. The first view there was the security guard, with his long (not so clean looking) hair pulled back into a ponytail, standing outside, leaning up against the building, playing with his phone. The building was an older building and had seen some abuse. There were several attendants and several customers coming and going and we noticed how all of the people were dressed, or not dressed. Finally I notice that everyone but the guard and one other person (who was Mexican) was black (which meant I was one of two white people around there), and all eyes were on me as I got out of the car (and I am really uncomfortable when all eyes are on me). The combination of these things and the frustration already in my mind left me quite anxious but I continued into the store with map and pen in hand, in search of someone who could help us.
As I was walking in I was looking through the window, surveying my surroundings, wondering who was least busy and most knowledgeable, that I might choose to help me. A young man (dressed quite normal looking) passed by and opened the door for me and asked if I needed directions. I obviously said yes and asked if he knew directions. He was confident that he did, and then kindly gave me directions, allowing me time to write them down and then told me it was really easy. That is when I knew I was in trouble. We had heard that a couple times before and it seemed to me that easy meant something different than I had originally been taught.
This kind man offered to let us follow him because he was going that direction, but I didn’t want to be a bother so I just repeated the directions back to him to make sure I had it right. He then insisted that we follow him, so I agreed and went to the car while he finished what he needed to do in that store. We saw him look for us to make sure we were still there, and in a couple minutes he came out and over to my window to let me know that he would get us on the right road and would wave us on when he needed to exit, and that we should just keep going as he directed and we would find Norman.
By the way, this man informed me that we were in Del City. Finding it on the map made me realize just how lost we were. But then, there is no Norman on the map, and no Stockyard City either, so how were we to know where we were and where we should be going? We just know that Del City isn't in the right direction, and we think we can see where we may have taken the wrong exit. (It looks much easier on this map than when we are on the roads out there.) I should have printed my own directions before leaving home, but didn't think of that at the right time. Oh Bother!
This kind man got in his really nice small SUV (lucky guy) and drove slowly and carefully, making sure to not let any other car get between us and blinking ahead of time to let me know where he was going next. It all seemed quite easy for a few turns until we came upon an area with three or four different options (by now, we have learned that that’s how it is in Oklahoma). He took the first far left option and that is when we became most grateful for his help because we knew we would not have taken that turn and we would have been lost again.
We continued following him for a few miles and he rolled down his window, suggesting that we might pull up beside him, so we did. He smiled and told us to continue on this road and we'd run right into Norman and that he would exit here, and then he said "See, black people are good people!" as he continued his way over to the right and off the highway. Of course we agreed and I had to laugh at myself because it was then I realized how distraught I must have looked while walking into that Circle K.
We continued down the highway and we did find Norman just as he said we would. I wish I had this young man’s name and address so I could send him a thank you note and gift, but instead I just pray that the Lord will take care of that for me. This man was our angel and we love him for that.
Our adventure wasn't over though. We saw our hotel and got checked in and settled in our room, and turned on the heater that filled the room with a terrible burn smell that in a minute had the fire alarm going off. Oh Bother! We just wanted to rest and sleep for the night. We got that cleared up and got in bed ready for sleep at about 12:20pm. What a day!
Next morning we were off to find Skyler and Lisa’s apartment. And yes, the map made it look easy, even to me. So we headed on our way down Lindsay St. to find Houston Ave., but when we got to the OU campus the traffic was being redirected. We thought that should be easy too, because we could just take the next road over and continue on to Houston. Right! Well, it was campus and campus has no rhyme or reason to their streets. Not only that …, but it was homecoming and people were everywhere and people were standing with parking signs in every directions trying to coax us to park in their area for a $20.00 or $10.00 fee. We weren’t going to the game, so much to their disappointment we were not interested in parking in their lots. We stopped to ask a few of those attendants where Houston St. was and no one knew, not even the college looking students. Oh Bother! We finally entered another street with “no outlet” so we called Skyler to find out which direction we should go next.
We made our way back up to Lindsay St on the other side of campus and continued on our way to find him standing beside the street side so we would know where to turn. We made it!
It was interesting to note that our trip back to the airport was confusing too, but less of a problem. We had written directions and street signs telling us where to go, but the two did not seem to tell the same story, so with what little knowledge of the area that we had previously gained we made it safely back to the airport with time to spare. We were on our flight and headed home.
Oh Bother! We were right in front of the air conditioning vent that was blowing out freezing air and Terry began to chill and tremble again. No blanket on that plane either. My feet were still freezing cold a couple hours after that leg of the trip.
We were so happy to be in the comfort of our home when we arrived safe and sound Monday night. We said hi to Anthony and we headed to bed.
I am reminded of a 1970's song with one phrase that fits well here - "The things we do for love!"
Yes, it was all worth it!
Thursday, October 16, 2014
Transfusions
No labs were required today since they took care of that Tuesday so we went straight to the third floor for transfusion today. Terry received 2 units of reds and 1 of platelets. He's filled up for the weekend!
| image from LDS SMILE complete message - Which Way Do You Face? by Elder Lynn G Robbins |
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