Thursday, September 26, 2013

Today's Schedule

We spent the morning reading through the stacks of paperwork they sent home with us yesterday.  Consent forms and studies and all sorts of research they wish to do. We agreed to some of the extra blood samples and to all of the studies using the leftover specimens, but did not agree to extra bone marrows and skin biopsies or other specimens.  I think he is going thru enough right now, we don't need to add to it.

Appointments started at 1:30, and included these:

Mtg with financial rep - signed papers for help with the donor portion.

Mtg with social worker - she was a very kind and respectful person that assured us she was there to help in whatever way we might need throughout our stay.

EKG - quick and easy.

Conference - this is where we learned about what would take place. The doctor kept it short because we have some experience behind us.  This is where we signed the paperwork we read this morning.

The transplant conditioning will begin on the 12th of Oct. with the transplant taking place on the 16th.

Things have changed a bit since we came in July.  Most of what we learned then has changed.  We have now learned that things will go much like the first transplant experience, except that the transplant will take place in the hospital, but he will only be there that one night.

Terry presently has a bit of Dennis' blood, so after transplant he will have three different types of blood until this second donor takes over. We are planning that it is going to take over!

I'm sure we will learn more as we go along, but that's all I can think of for today.
Tomorrow they will keep us busy with blood draw, dental visit/x-rays, bone marrow biopsy, sinus CT, and ECHO at the UW Medicine Regional Heart Center in Edmunds.


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