Friday, August 27, 2010

Today's News:

We have more news, though the final pathology reports may not be in, we have been told that Terry does not have GVHD, but does have CMV. So, we didn't get to go home today. We cleaned and packed, but will have to spend one more night here.

We got called back into the clinic this afternoon for an infusion. It was good to learn more news, but it cut our visit with Ellen and Wayne short - but short was still great.

The infusion was medication to help clear up the problem with the CMV. He will have to have two infusions a day for about a week. This is something I can do because he still has his Hickman Line. It is considered a form of chemo, so it's a bit tricky trying to dispose of everything, but we are coming back every Tuesday so it will turn out okay.

Coram will bring our supplies tonight and we will let Terry rest and have a good night, then we will drive home tomorrow. We won't be released from SCCA, but we will only have an appointment on Tuesdays until they decide differently. (Now that I've said that we will get a call tonight telling us something completely different :)

For now, our plans are to go home and return to Seattle every Tuesday for a few weeks. We are lucky to live only a couple hours away or we'd be staying here longer. Doctor says no working and buy a new pickup :) I encouraged the last part :) We will continue to share info as we get it. It's not over yet!

2 comments:

Becky Noftle said...

What's CMV? Never mind I'll google it, it'll make me feel young! Glad you are getting to come home. New pickups never hurt anyone!

Louise said...

Hooray, hooray! Have a safe trip and enjoy getting back into the routine of everyday (almost) life. That can be most wonderful I've decided!