A Full Day - Finally Over!

What a full day we had today.
I took Anthony to Moses Lake for ortho and medical appointments and we picked up some supplies he needed for a school project.
I got him back to school, went home, and got back in the car to take Terry to SCCA.

Our clinic visit seemed similar to many other visits we have had but we are happy to report that the urine infection is getting better, as are his cold symptoms. They referred to Terry's last couple issues as adenovirus and hemorrhagic cystitis. Unfamiliar words for me, but each is getting better, so we are happy for that.
No G shot today. We are going to see if he can bring his counts up on his own.
WBC was up from 2.41 to 3.27 - each time with a g-shot starting off his week. We'll see next week if it is still rising without the shot or???
Hematocrit is 32
Platelets are 93
They are trying one more time to get our summary conference in. It is scheduled for Monday. This will be our 4th or 5th try at it, so we aren't holding our breath - just crossing our fingers. We'll see! It is currently undecided if he will keep his Hickman line in or not.
Terry is doing better in some ways, but is struggling in others. He is having some terrible muscle cramps in his legs, hands, and even in his back the last couple days. These are attacking him often and keeping him up at night. He is tired and weak and sore. We are trying a couple things they told him to try and hoping that he can find some relief - soon.
He is going to start tapering off the cyclosporine medicine... YEA! ...and should take his last one on the 14th. This is the med that helps prevent GVHD. Terry has no symptoms of GVHD so we pray that it remains that way.
We'll continue to report the news as we learn it.

If you are taking time to read this blog we can safely say that we love you and appreciate you. Your kindness and concern is greatly appreciated. Thanks again for your faith and prayers. They help keep us going!
Have a great day - everyday!