Today was our last day at SCCA. We had our summary visit as planned and said our thank yous and good-byes. It was a strange feeling to walk out of the clinic not expecting to return until we go back for our yearly check up. Unless something comes up that we are now unaware of we plan to spend more time with our local oncologist, Dr. Julie Smith.
We received a bundle of info to take to her and have been informed of the things that we need to make sure get done, especially in the way of blood work. We know that we will be in good hands. We like our oncologist and look forward to seeing her again. The nurse we have worked with most in ML has already sent us a hand written letter to let us know that she looks forward to our return, offered her help in any way, and wished us well. We haven't received many of those, if any, and it touched our hearts. We get kinda connected to these people and they hold a special place in our hearts. After all, where would we be without them?!
Terry still has his Hickman line. He is tapering off some meds, will stop another this weekend, and we will be watching for GVHD symptoms. The medicine he stops taking Friday should help his blood counts to rise again, which should give him some more energy and fewer headaches. They will leave the line in for awhile until they are assured that he is stable.
We do get to leave SCCA's constant care, but they are still quite connected. They will work closely with our doctor and we will personally send some blood samples to them weekly. We have a number to call them if we need them and doctors will continue to "talk about us" for quite some time.
We have to be careful. He is released from the clinic, but not given permission to get right back into life as he knew it before. I promise to try to keep him away from the work and the dirt, but try is far from actually doing. This may actually prove to him that I do not always get what I want or what I ask for :).
Here's hoping and praying that we don't do anything that sets us back!
3 comments:
I'm happy and scared for you, I bet you know what I mean. It's like doing the trapeze without the saftey net for the first time. That is really sweet that his nurse sent you a note--comforting and a confidence builder that they will be taking great care of you in ML too. Congrats to the whole Hebdon clan!!
AWESOME DAY Now for the prayers that will keep Terry from over doing and getting into the dirt. Pretty hard thing for a farmer to avoid, but I know he can do hard things because he already has. (BIG HINT). I am grateful for the ML people who will now be helping you and many thanks to the SCCA for all their help also. Have a wonderful day, all of you. Thank you for the blanket you made for mother, Elaine. Shawna said she took it into the west bedroom, crawled under it and went right to sleep. So thoughtful and sweet of you! I love you all, Ellen
That is wonderful news!!!! However, Grandpa Keith just told me he is back in the fields today. Hopefully as a spectator and not as a worker. I'm headed to see G&G Hebdon on Friday. If time allows, I'll pop in and say hi to you guys, as well. We will be working on family history. You are more than welcome to join us, if you like. Sometime Friday afternoon.
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