Day 104

Skyler, Chase, Connor, BrittanyJo, and Anthony came to visit us Sunday afternoon. It was good to see them again.
Monday was a full day. We had a barber shop party in the morning. Chase, Connor and Terry got hair cuts. The barber shop was this tiny kitchen and the barber was me, of course. That afternoon we walked to Pike Market, checked out the shops, the fish throw, the pig, and the gum wall, then stopped for an icecream cone on our walk home. Some of us went to Safeway, and then we made pizza for dinner, and the day was done.




We had a good breakfast Tuesday morning and the 3 older boys loaded up and went home. BrittanyJo and Anthony stayed with us and we had a long day at the clinic. We came home for a late lunch/almost dinner and played games, put together a puzzle and wrapped ribbon around water bottles for the wedding luncheon.

We went into our appointments thinking that the EBV or mass on Terry's adrenal gland was the main concern and left the appointment with a different view.
It seemed that the doctors were less concerned about the EBV after finding that Dennis has had that virus sometime in his life. Their thought is that lowering the immune suppressant medicine will allow Terry's body to fight it on it's own, so we were just going to watch it closely and try to ride it out.
The new concern seemed to be the liver, as it continues to worsen slightly with each new set of labs. Another concern is the discomfort and pain that Terry is having in his side. His energy level is declining too. They added a visit to the GI doctors to our schedule.
These newer concerns must be analyzed and controlled before we can leave. They had Terry get a chest x-ray after the doctor visit today so they could check things out again. We received a call last night telling us that they will be adding more tests and appointments to our schedule this week, due to the findings of the x-ray. There is more fluid in his chest and they must correct that.
They are aware of our upcoming wedding and want to let us go, but must have this under control before they can allow it. If it is a form of GVHD they must handle it sooner rather than later. They are still working to get thing taken care of by the end of this week so we can go home for a few days. We'll see.
It seemed that they were sympathetic to the issues we were having and felt bad that they could not send us home already. We continue to hope for the best, and be able to return to our home to be with family for this special occasion.
The bad new is that we will not be home for the family reunion next weekend. We will be back here to Seattle so these awesome doctors can care for this awesome man.