SCCA LTFU Visit

Our itinerary for today was something like this:

-3:00am Got up and finished packing.

-4:00am Left home / drove to SCCA.

-7:30am Registration at SCCA.

-7:45am (Fasting / No breakfast) Blood Draw
They took 19 / nineteen vials worth of blood!
The first reports came back on 9 pages / the first page was just a cover sheet.
WBC = 1.36
RBC = 3.45
Platelets = 58
Neutrophils = .62
Sodium, Potassium, Glucose and Protein were all normal today.
Calcium was slightly low and ALT, AST were both still high, though slightly lower than last week.

-8:30 Evaluation (almost 2 1/2 hours long)
First with the nurse, Joanne Quinn (no known relationship to our daughter-in-law) but a great lady whom we really appreciate.
Then with our Primary Provider, Carina Moravec, another great lady.
Then with Doctor Hans Kiem, he's great too, but my goodness we sat through a third review of the same questions and concerns and tests, etc. Dr. Kiem had a student following him for our visit - a gal from Tokyo Japan.
They are very thorough here.

-11:00 Ate at the Red Brick Bistro on the 2nd floor / SCCA.

-12:00 Checked in for the Bone Marrow Procedure, received oral sedation (Ativan and a lollipop / fentanyl)Then had the biopsy - yeah! only one side. But she did have to take a skin sample from his upper arm today, which adds slightly to the discomfort.

-2:00 Back up to the 6th floor for a neupogin shot to help stimulate the white blood cells or neutrophils.

Overall they feel that things look good and are excited about no GVHD, which allowed us to cancel the Oral exam, the Nutrition consult, the Physical and Occupational Therapy and even the Vaccine appointments that were scattered throughout the next three days. Not to worry ... we still have appointments, even an added appointment and blood draw, so we aren't completely free.

-4:00 Checked into our room, ate dinner (leftover pulled pork sandwiches we brought from yesterdays lunch), and are now going to just relax and let Terry be still. We are both very sleepy and glad to have today's visits over. (My mind is muddled due to lack of sleep :) so I hope this made sense!)

Love to all!!!