Our New Place

Well, last night was a hard night ..., hard to sleep.  Terry had been given medication to help get rid of the hives during his infusion and it does the opposite of what Benadryl does - it keeps him awake. That makes for a tough night.  He came out and watched TV and didn't get back to bed until 3:00am.

I started unpacking and putting things away this morning, so things are pretty much where they will stay, unless I change my mind later (and I reserve the right to do that).

Terry made a Spanish Tortilla for us for breakfast, but it was pretty tricky without the right pan and no salt, but he made it work and it was delicious.  We're so glad to have a kitchen and plan to get it supplied with things we will be using often.

Our first appointment for the day was at 2:15 for blood draw and then we had a 3:00 appointment with our team, which includes a nurse and two different doctors.  It was quite informative and we were happy to learn the new plan, though the timing is not really what we were hoping for.

Terry will have an Ofatumumab infusion at least once a week to help control the disease and not let it get too bad since we are taking awhile before transplant.  This week he will get two - he had one Monday and gets another (much larger dose) Thursday.  They will start right out with the hydrocortisone to begin with so that he doesn't get hives and they can pump it faster to get the right dose.  I hope it doesn't keep him awake all night again, I don't know how many sleepless nights one can handle when health is already an issue.

Transplant is now scheduled for November 22nd.  They tell us that is the best timing for the donor.  Whatever the reason we are on their terms and timing, so what can we say?  I guess one thing we did say was "please put the Hickman Line in now!" because he is tired of getting poked like a pin cushion.  He has had too many blood draws and infusions lately and they have to poke him each time (twice a day many times).  They agreed to put it in early, but will have to check with our insurance to make sure. Hopefully it can be done soon.

We're just taking it one day at a time, but this timing thing is pretty tricky.  Speaking of time - I think it's time to show some pictures. We'll start with SCCA House, room 313, so this is the place we left behind.

This was our bedroom (sorry, I was moving out at the time I took this photo so the bed is not made).

This was our kitchen and hallway to the bedroom and bathroom (view is shown from standing at the front door).

Did you see the fridge?  It's under the counter under the microwave.

Here is the living room and dining room and office space, just past the kitchen and right in the bedroom.

Here is the bathroom.  It was a good size room with nice drawers and counter space.

Oh, here is the closet in the bedroom.  Great drawers!

Now that was nice huh!  We were definitely happy to have it available for us. 

Now let me show you where we moved into.  Pete Gross House Apt. 312 -

Our bedroom.

 



With a bathroom.

 Our kitchen.

A second bedroom.

Our dining room, that I changed into a scrapbooking area.

 

Here is the dining room and the living room, as seen from the scrapbooking area.  ;)

 



 

And look at my laundry room.  ;)

 

 

Oh, here is our main bath.

 

Here is the look from our front door (main bath to the left, laundry in the closet at right, two bedrooms straight back, and the office desk).

 

 Another view of the desk (from the hall leading to the living area.

 

Here is a closet in the hall.



 This view is in the entrance at the desk, looking down the hall toward the kitchen and living areas.
(The hall closet can be seen at the right of the photo and the bedroom doors can be seen on the left of the photo.)

 

Well, that ought to have been confusing enough.  But, we are loving the larger space with a real bedroom and a real kitchen and a real living room area and dining room area, and a washer and dryer and ....  We know it's not perfect, but it's great!  We are happy to have it.  It's a bit more homey.