Tuesday, May 25, 2010

Here's what we learned at todays clinic visit:

- "Things are going well."
- Kidney function is better, almost normal.
- Some concern still with the liver and spleen.
- Remain at 1 liter daily hydration. (This is the IV fluid, which is in addition to his drinking and eating amounts.)
- White blood improving, is at 2.4
- Neutrophil improving, is at 1.64
- Platelets are good.
- CLL improved from about 5% when we started to about 2.7%. "But it's still early!"
- Chimerisms - "Well engrafted at this point." (this is where it tells us how much is Dennis' vs Terry's blood) 70% Dennis and 30% Terry. "It was a slow start, but this is a good number. We usually like to see it at 50% or better at this point, so we like these numbers."
- Red cells are "being chewed up faster than normal" and cause some concern. They are looking into this and trying to figure out why this is happening. This is usually a concern for patients who have a donor that was not a perfect match, but we had a perfect match, so they are wondering about this a bit. This necessitates more blood draws - which meant we went back to blood draw today, for a second draw, and will have daily draws until it is no longer necessary. Blood transfusion could be in his future if it does not improve itself. This count actually explains his lack of energy. His get up and go, kinda got up and went ... without him.
- One more medicine is added to the mix. But only two days a week. That is only four pills a week more than now, so that is good for Terry, but it makes things a bit more hectic to schedule and remember.
- Next bone marrow aspiration at day 56.
- More walking! "Get out more!" Just like they told Fival - "Keep walking!" They want Terry to spend some of the energy he doesn't have! That's harder than spending money you don't have. But, we can do hard things!

3 comments:

Ellen said...

It is 9:45 pm and I just got home from the temple. It sounds like over all things are pretty good, but that (as usual with this type of thing, I would think)there are still concerns. We will continue to pray and never cease as we know He hears and answers every prayer. I am hoping to come and see you next week and wanted to surprise you but think since there is some tight scheduling for you there, it would be better if you knew ahead. I am shooting for Wednesday. Let me know what you think. Love to both of you, Ellen

Becky Noftle said...

I wish I could send you some of
Carter's energy!! I the up side your WBC is higher than Jackson's we get his counts tomorrow so we'll see about the Neutrophils, the contest is on!!J/K!!

Tyler said...

Just want to thank you for your great example of enduring, of loving, and being willing to do hard things. We pray for continued blessings to come your way and also the rest of your family. Lots of love, Sherri and Bryan and family