Wednesday, January 29, 2014

Clinic Visit today - T67

Wanna know what we learned at our clinic visit today?  We didn't expect too much today but have another visit scheduled for Friday and expect to learn much then.

Today was about the same as the last few:

- BK virus (urine infection) is often seen after transplant and could last up to 6 weeks.

- The CMV has come back negative so we will finish the next three days of the Foscarnet infusion and then be done with that, trading it for an oral medicine that he was taking previous to this infusion.  This medicine depletes the magnesium so maybe he can find some relief from the cramping.

- Start taking an oral magnesium, which we hope will help with the cramping in his hands, legs, and even torso.

- Yesterdays lab results remind us that the news we get and then give you is likely to change the next day or two, if not the next hour or two. Counts are down.  WBC - 0.36L,  RBC - 3.26L,  PLT (Platelets) - 29L (so we had a platelets infusion today at 10:30),  ANC - 0.06C (leaving this as it is so we don't stimulate the MDS, sending it further in the wrong direction.)

- Creatinine is another level we watch to decide if he needs more fluids.  It is 101 at the moment, which means he is doing fine, but will continue to receive hydration for the next few days (at least).

- One last thing = They have some of the first reports from the bone marrow; just enough to know that we haven't made much progress (but they often don't at this point and things still turn out)favorable.  We will learn more Friday that will direct us to the treatment they think will best benefit Terry.  We are anxious to learn. 

Again, we are not moving to the new apartment yet.

Here is our latest puzzle.  Awesome huh!





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