I guess we did spend as much time with the kids as possible, but the throwing up yesterday led us into more appointments today, making less time available to us.
We headed out to blood draw at 9:00am. We then had a consult with a GI doctor who decided that a endoscopy would be a wise thing to do today, so an appointment was made for 1:00 at the UWMC. We were warned this might be the case, so Terry did not have anything to eat or drink after midnight last night. The next appointment was clinic visit with the team.
We learned that the level of CLL/SLL in the marrow is down from 70% to 13%. This is really in the range they expect, and the graft will continue to knock that number down in time.
Blood counts continue to slowly improve thought they are still low. Doctors are okay with everything that is happening, though they are wondering about the problems of throwing up yesterday, and would like to determine if it is GVHD or an infection of another sort.
Our next appointment was an x-ray and then we took the shuttle over to the UW for the endoscopy. We learned that they did see some spots that could be GVHD or an infection, so they took samples and sent them for testing. There was one spot that did not appear to be either, and the doctor took a sample of that and sent it away. We don't know if the results will come tomorrow or the next day, but we will share when we hear.
We got back to the apartment about 3:00pm and the kids were out on an adventure. When they got back we got dinner ready and opened some gifts. It was so nice to be together and yet it seemed like such a short time together since most of our day was spent at the clinic.
Elsie watches a movie -
Auger, Akleigh, and Elsie enjoy some treats and some time together.
We are all crammed into this little apartment, but be assured that this little apartment is filled with love.
We opened gifts
Auger is showing us his new tie
Elsie and Akleigh have their new scarves
Before we opened gifts we enjoyed a great dinner around the table with an unexpected centerpiece sent to us from a friend. There have been many wonderful gifts sent our way and we Thank you!
Michael and Tawnee went home for the evening and Thomas and Dana stayed, (as did BJo and Anthony).
We took bon bons with us to give to our shuttle driver and nurses and doctors to wish them a Merry Christmas. The Christmas spirit of giving was everywhere we went today and there were sweet surprises waiting here at the apartment for us from friends and from others we have never met but who want to give and share. It is a most wonderful time of the year. We are grateful for everyone's goodness and kindness.
Mostly we are grateful for the Savior ... the reason for this season.
Terry is feeling better than he did yesterday and we look forward to better days ahead ..., some day!
We wish you a MERRY CHRISTMAS!
2 comments:
MERRY CHRISTMAS! I hope and pray that this will be a good day for all of you and that the team will be inspired as they study the tests that were done yesterday...your Bon Bons remind me of Carmel popcorn here. We have 5 cabins and a big lodge and everything is full for Christmas, so yesterday Wayne and I spent about 4 hours making Carmel popcorn for our campers as a Merry Christmas from us. I had run out of gift bags, so I covered 4 empty food storage cans, an nice cream bucket and a box with wrapping paper and we filled them with the corn . It was so much fun. I made ribbons for the tops of each container bu shredding and curling some of the same paper that the containers were wrapped in.
Tell everyone hello for us and I am praying that you have a wonderful Christmas. I love you all so much!
The Larson families send their love and Christmas cheer for you feel and all to hear. MERRY CHRISTMAS!! Our card is a New Years card as we are all together on Saturday for pictures. Pray today brought much better health and a special day. We too are thankful for our the birth and life of our Savior.
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